I’ve decided that I want to get off most, if not all, of my medications. Continue reading
There really haven’t been any new developments with my Lyme Disease, if that is, in fact, what I have. I’m just not too sure any more. I’ve been having a lot of stomach issues still and it doesn’t seem like my pain is getting any better. I guess I need to at least continue my search for the correct diagnosis.
I think I also may have a problem with anxiety. The other day when I was at school, I literally made myself sick thinking of all the stuff I had to do. Always, when I look back, I see that I overreacted, but in the situation, that knowledge doesn’t help a thing. I hate being this way. I know that it prevents me from doing things that a normal person would do because I’m concerned what kind of stress it will bring me.
Another Lyme update for you:
I have to take the good along with the bad. Luckily, the good (Days) are starting to become a bit more frequent. On the last day that I had no symptoms, we had to run in P.E. I found out that I was able to run a lot longer. Normally I am only able to run very minimally before my calves start to cramp, my ankles die, and my knees scream out in pain, but that day, those problems didn’t even exist. I was able to run until I was actually tired, like a normal person. Granted, that is not very long seeing as I find it hard to stay in shape when it hurts to run, or even, sometimes, walk. I feel like I think people should feel. I am able to walk down the hallway with my head held high, not feeling the pain that would generally plague my back and, most likely, some other part of my body. I love these days!
I do, still, have bad days. More so than the good. Lately, bad days involve stress, an occasional panic attack, upper back and neck pain, depression, fatigue, and digestion problems. Today was one of those depression days. Luckily God is continually by my side, and reminds me that throughout the day. He’s the only thing that keeps me going!
The Herxheimer reaction (also known as Jarisch-Herxheimer or Herx) occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment. I missed two days of school due to Herxing. I did some research and it looks like, with Lyme Disease, Herxing symptoms are one’s regular symptoms intensified. I usually struggle with fatigue, but it’s been so much worse since I started the Doxycycline.
Supposedly, the medication works better when you take it on an empty stomach. I’ve taken it before for a sinus infection, and I threw up twice. Once when I had eaten food, and the other on an empty stomach. I wanted to try it on an empty stomach again, so I gave it a try on Monday. I was terribly nauseous. I really thought that I was not going to make it through the day without puking. I did though but probably because I rested the rest of the day.
I stayed home on Thursday because I was exhausted! I almost felt flu-like. I was achy all over and everything.
Luckily, as of yesterday, I’ve felt great. I’ve been keeping a symptom journal, and I had nothing to write down today. I need to make sure that this one is done working, but my doctor said the next step is to start a new antibiotic.
I’m not sure if me getting better so quickly is a good thing. That either means that it’s going to be a really quick recovery, or that I’m not going to get better because I don’t have Lyme, or that I’m going to have to continue to keep trying new medications with new symptoms every week.
Okay, so if you have read some of my earlier posts, you know that I’ve had health problems for pretty much my entire life. Well I thought someone may be interested to know what I’m starting to get treatment for.
Friday morning, I went to the doctor to get the results of my most recent blood test. I am tested as often as our insurance allows. I found out some interesting things. My doctor ran lots of tests we regularly do, but she also performed two new ones based on a hunch. She tested me for Lyme disease. Neither test is definite, there is no way to ever be one hundred percent sure that you have it. I tested negative on the first test, but the second one suggested that I have it.
I started taking Doxycycline that night. It says that it works better without food, but I’ve had it before without and it made me sick. I am going to try it without food tonight. Hopefully it goes well.
I’ll keep posting updates.
I seriously think that P.E., as in Physical Education, should be illegal. Ok, I admit, that is a bit extreme, but it is seriously torture. In Illinois, and other states, it is illegal to go to school and not take a P.E. class. The only legal way to escape it is to play a sport. Even if you have an injury, you must still participate.
First, in my opinion, it is impossible to get a good workout in 25ish minutes. Right when you are about to get into burning some serious calories, and you have to go back in and change. (Not that I really care that much)
Second, P.E. is a breeding ground for bullying. If you’re as popular as me, which isn’t too popular, you aren’t likely to have any friends in your P.E. class. At least that is how it is in my school. When you aren’t hanging out talking with anyone, that automatically makes you an outcast. Then, to make it worse, when you play games, no one ever passes the ball to you, or when you run, you have to be alone while everyone else is chatting it up. When no one passes the ball to you, you don’t feel like participating, then you fail the class.
Last, I am able to run, but it is really painful. If you aren’t aware, I have an undiagnosed pain disorder. Some say Fibromyalgia, others say Myofascial Pain Syndrome. Anyway, we run every other day, and to get out of it you have to have a doctor’s note. I do have a doctor’s note that says I can only do activities to my ability, but I hate to be dishonest and I hate to be viewed by other’s as a slacker, so I try my hardest. The next day I always regret it though. I also feel bad for those students who’s doctor won’t write them a medical note, or they aren’t physically fit enough to get a good grade on the mile runs. That’s right, everyone has the same grading scale. Granted, the girls’ and the boys’ scales are different, but not everyone is a star athlete.
P.E. makes me feel like such a loser, and that’s why it shouldn’t be illegal not to take a P.E. class or participate in a sport.
Several years ago, my mom was diagnosed with Hashimoto’s Disease. It is a disease that affects your thyroid gland. I don’t want to get too scientific on you, but the thyroid produces hormones that coordinate many of your body’s activities. Hashimoto’s is when your immune system attacks your thyroid gland. The resulting inflammation often leads to an underactive thyroid gland (hypothyroidism). Sometimes, your thyroid can flare back to life causing symptoms of hyperthyroidism. Thyroid problems are genetic and more common in women than in men.
My symptoms: Hair loss, Bradypnea (low breathing rate), Fatigue, Excessive sleepiness, Sore muscles, Muscle weakness, Menorrhagia, Poor limb circulation, Depression, Dry skin, Swollen ankles, Shortness of breath, Several cognitive problems including forgetfulness and speech problems, Cold feet, Trouble swallowing, Low good cholesterol, Irritability, Brittle nails, Family history, and Unable to lose weight. All of which are related to Hashimoto’s.
I think I was about nine when everything started. I just pray that, someday, hopefully soon, they will at least treat me if I am not diagnosed. About every six months, or however often insurance allows, I religiously get my blood drawn. Every time, the nurse, or whoever, calls back and tells me, “good news, you are not hypothyroid.” Little do they know that that news is bad news. I want to be diagnosed. Not because I want to have a disease, but so I can be treated for it.